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Narcolepsy News Segment
-
0:00 - 0:01[ Background Music ]
-
0:01 - 0:02>> Welcome back.
-
0:02 - 0:04We are bringing you some
of the most compelling -
0:04 - 0:05"Mysteries of the Mind" tonight.
-
0:05 - 0:08And this one strikes
during adolescence -
0:08 - 0:11and makes otherwise
normal teenagers collapse. -
0:11 - 0:15Not just into a deep sleep, but
into a mysterious netherworld, -
0:15 - 0:18a world filled with
hallucination, paralysis, -
0:18 - 0:22and strange sensations that
strike without warning, -
0:22 - 0:26linger without a cure,
and can last a lifetime. -
0:27 - 0:38[ Music ]
-
0:38 - 0:38[ Background Music ]
-
0:38 - 0:41>> An insatiable need for sleep.
-
0:41 - 0:51Sudden episodes of paralysis,
vivid hallucinations, -
0:51 - 0:54this is the life
of a narcoleptic. -
0:54 - 0:56>> I don't really even
remember a whole lot -
0:56 - 0:58of my sophomore year
just because I slept -
0:58 - 1:00so much through my classes.
-
1:00 - 1:02>> Anthony Raymond was
your normal high school kid -
1:02 - 1:07who loved acting and the theater
then his life mysteriously -
1:07 - 1:08started to change.
-
1:08 - 1:10>> I just started feeling
sleepy throughout the day. -
1:11 - 1:12I didn't think much of it.
-
1:12 - 1:16I just thought it was
some weird puberty thing. -
1:16 - 1:18[ Background Noise ]
-
1:18 - 1:22>> Occasional daily naps turned
into a constant need for sleep -
1:22 - 1:24that he could never satisfy.
-
1:24 - 1:27>> I was sleeping every
chance I could get. -
1:27 - 1:32In addition, I started
experiencing these other weird -
1:32 - 1:34symptoms like sleep
paralysis at night. -
1:34 - 1:35>> And what is it exactly?
-
1:35 - 1:38>> I'll be lying down, and all
-
1:38 - 1:41of a sudden I can't move
any part of my body. -
1:41 - 1:47And usually what will accompany
this are these hallucinations, -
1:47 - 1:50which not only do I see
things and hear things, -
1:51 - 1:52but I also feel things.
-
1:53 - 1:57I can remember one time
being completely paralyzed -
1:57 - 2:02and feeling a fox kind
of crawl under my back. -
2:02 - 2:04>> Can you scream when you
are paralyzed like that? -
2:04 - 2:05>> No. I can't scream.
-
2:05 - 2:06>> You can't move
your body at all? -
2:06 - 2:08>> But eventually
I break out of it -
2:08 - 2:11and I will scream or something.
-
2:11 - 2:11[ Inaudible Remark ]
-
2:11 - 2:11[ Background Talking ]
-
2:11 - 2:17>> And then there's
the most difficult -
2:17 - 2:19and potentially dangerous
symptom -
2:19 - 2:21of narcolepsy, cataplexy.
-
2:21 - 2:24At any given moment
Anthony would collapse. -
2:24 - 2:27He would be paralyzed
for minutes at a time. -
2:28 - 2:31>> Probably the scariest
thing is falling to the ground -
2:31 - 2:33and not being totally sure
that you are going to fall -
2:33 - 2:35in a position where
you can breathe. -
2:35 - 2:39I could fall in a space where
my face might be smothered -
2:39 - 2:42by a cushion or something.
-
2:42 - 2:46>> In extreme cases,
like this Scottish girl, -
2:46 - 2:50it can happen more than 45
times a day, usually brought -
2:50 - 2:54on by emotional excitement like
laughing, anger or surprise. -
2:55 - 2:57Experts estimate
that at least half -
2:57 - 2:59of narcoleptics have cataplexy.
-
3:01 - 3:05For Anthony, these sometimes
daily episodes make driving, -
3:05 - 3:08working, and dating
nearly impossible. -
3:09 - 3:11>> It starts in the
neck and the tongue, -
3:12 - 3:13unable to move those parts.
-
3:13 - 3:15And then it goes to the
legs and then eventually, -
3:16 - 3:18you can't move anything.
-
3:18 - 3:22>> And there's nothing you can
do to pull yourself out of it? -
3:22 - 3:24>> Nothing I can do except wait.
-
3:24 - 3:29I can try really hard to
move and every now and then, -
3:29 - 3:32I'll gain just enough
strength that I might be able -
3:32 - 3:34to jerk my arm up or something.
-
3:34 - 3:37>> And are you consciously
thinking I'm going to ride this -
3:37 - 3:38out for another minute?
-
3:39 - 3:41>> Yeah. It's just kinda
like that bad dream -
3:41 - 3:45where you can't move
and you can't scream. -
3:45 - 3:47>> Anthony's was
really a classical case -
3:47 - 3:49when he came to me.
-
3:49 - 3:50This is a perfect slide here.
-
3:50 - 3:50[ Background Talking ]
-
3:50 - 3:53>> Dr. Emmanuel Mignot
is Anthony's doctor -
3:53 - 3:55and the director of
Center for Narcolepsy -
3:55 - 3:57at Stanford University.
-
3:57 - 4:00He says that despite all
the sleep Anthony gets, -
4:00 - 4:02he's never well rested.
-
4:02 - 4:04>> They are exhausted
all the time. -
4:04 - 4:05They take little naps,
they feel better. -
4:06 - 4:09But then after one hour or two
hours, it just starts again. -
4:10 - 4:13And at night the same thing,
just exhausted and they arrive -
4:13 - 4:16in their bed, boom,
they sleep and then -
4:16 - 4:18after two hours they wake
up unable to fall asleep. -
4:18 - 4:21Basically the cause of
narcolepsy is very simple. -
4:21 - 4:21[ Background Talking ]
-
4:21 - 4:21[ Background Music ]
-
4:21 - 4:25>> Narcoleptics can't
produce a brain chemical -
4:25 - 4:27called Hypocretin.
-
4:27 - 4:29Normally it helps
you stay awake. -
4:29 - 4:32Without it narcoleptics
constantly fall it REM -
4:32 - 4:35or dream sleep, but
they do not fall -
4:35 - 4:39into the deep restorative
stages of sleep so they wake -
4:39 - 4:41up too soon, and wake up tired.
-
4:41 - 4:45The mystery, what
causes the death -
4:45 - 4:46of these precious brain cells?
-
4:46 - 4:50And why does it often
happen during adolescence? -
4:50 - 4:53The other mystery,
how to restore -
4:53 - 4:57or replace those cells
and cure narcolepsy? -
4:57 - 4:59Fortunately, doctors
have developed drugs -
4:59 - 5:03to treat the symptoms.
-
5:03 - 5:06>> It's kind of gross,
but it does the trick. -
5:07 - 5:10>> Every day and every night,
Anthony takes a carefully- -
5:10 - 5:12prescribed mix of drugs.
-
5:12 - 5:17>> I have got about 20
minutes and I'll be asleep. -
5:17 - 5:19>> One drug gets
Anthony's brain and body -
5:19 - 5:22into a deep restorative
sleep, so he's well rested. -
5:23 - 5:27It also helps reduce cataplexy,
but it doesn't work for long. -
5:27 - 5:30Anthony needs a second dose
in the middle of the night. -
5:30 - 5:36>> It is 2:11 a.m.
and I am awake again. -
5:36 - 5:38>> Anthony also needs a
stimulant during the day -
5:38 - 5:42and antidepressants to ease
his constant sleepiness -
5:42 - 5:43and cataplexy.
-
5:43 - 5:47>> OK, it's now 7:30 in
the morning and I just-- -
5:47 - 5:47[ Background Talking ]
-
5:47 - 5:48>> But even with
all those drugs, -
5:48 - 5:51Anthony can only stay
awake for about six hours -
5:51 - 5:52at a time during the day
-
5:53 - 5:59so he must follow a
strict daily nap schedule. -
5:59 - 5:59[ Background Music ]
-
5:59 - 6:00>> The first is in mid-morning,
-
6:01 - 6:03usually in his first
or second class. -
6:03 - 6:06Anthony closes his eyes
for 15 to 20 minutes. -
6:06 - 6:09>> If he's sleeping, he's
going to miss something -
6:09 - 6:12but I think he more than
compensates for that. -
6:13 - 6:16>> He also has to take a nap the
minute he gets home from school. -
6:17 - 6:19>> If I postpone
a nap long enough, -
6:19 - 6:21I just can't really function.
-
6:21 - 6:23>> But no matter what
medication he takes, -
6:23 - 6:27or how many naps he has, Anthony
still has occasional bouts -
6:28 - 6:31of cataplexy.
-
6:31 - 6:31[ Inaudible Remark ]
-
6:31 - 6:32[ Background Talking ]
-
6:32 - 6:33>> See his bobbing head here?
-
6:34 - 6:38This one happened while
he was watching a comedy. -
6:39 - 6:40But despite all these
challenges, -
6:40 - 6:43Anthony still has big
plans for the future. -
6:44 - 6:47He starts college in September
and hopes to become a teacher. -
6:48 - 6:51With no cure on the
horizon, Anthony is ready -
6:51 - 6:54for a life he knows
will be a nonstop, -
6:54 - 6:5724-hour game of beat the clock.
-
6:57 - 6:59>> I can live the rest
of my life like this. -
6:59 - 7:03Narcolepsy is a problem,
but it's not the worst thing -
7:03 - 7:05in the world for me
that could happen. -
7:05 - 7:08And I'm still living.
-
7:08 - 7:10>> And you know you
can handle it. -
7:10 - 7:11>> Yeah.
-
7:13 - 7:16>> And Anthony is doing a whole
lot more than just handling it. -
7:16 - 7:17He happens to be thriving.
-
7:17 - 7:19He is far from alone
though when it comes -
7:19 - 7:21to struggling with narcolepsy.
-
7:22 - 7:25The disorder effects
about 135,000 Americans. -
7:25 - 7:28Now in most cases,
symptoms first appear -
7:28 - 7:31between the ages of 10 and 25.
-
7:31 - 7:32We're gonna take a short break.
-
7:32 - 7:34We'll be right back.
dolanatpsu edited English subtitles for Narcolepsy News Segment | ||
dolanatpsu edited English subtitles for Narcolepsy News Segment | ||
dolanatpsu added a translation |