1 00:00:01,015 --> 00:00:11,023 [music] 2 00:00:11,023 --> 00:00:13,006 [male voice] They come one by one, 3 00:00:13,006 --> 00:00:15,005 all seeking answers to puzzling questions 4 00:00:15,005 --> 00:00:17,020 and ways of coping with the uncertainties 5 00:00:17,020 --> 00:00:19,046 and challenges that life can bring. 6 00:00:19,046 --> 00:00:22,056 Almost universally, they leave with new optimism 7 00:00:22,056 --> 00:00:24,046 and new tools to help them deal with the issues 8 00:00:24,046 --> 00:00:27,026 of concern. They are people with intellectual 9 00:00:27,026 --> 00:00:29,033 and developmental disabilities 10 00:00:29,033 --> 00:00:31,089 or the parents of children with disabilities 11 00:00:31,089 --> 00:00:33,059 and most have felt the frustration and pain 12 00:00:33,059 --> 00:00:35,076 of struggling to deal with the system. 13 00:00:35,076 --> 00:00:38,009 These individuals have come to Partners 14 00:00:38,009 --> 00:00:39,084 in Policymaking and their needs 15 00:00:39,084 --> 00:00:41,082 and circumstances vary. 16 00:00:41,082 --> 00:00:44,008 But all have sought ways to find new answers 17 00:00:44,008 --> 00:00:45,098 and to bring about change. 18 00:00:45,098 --> 00:00:47,075 They learn how to make their voices heard 19 00:00:47,075 --> 00:00:50,014 to play a role in policy development. 20 00:00:50,014 --> 00:00:53,043 Wanda Mills has lived with difficult disabilities 21 00:00:53,043 --> 00:00:55,079 for much of her life, but persevered 22 00:00:55,079 --> 00:00:57,040 and went on to employment 23 00:00:57,040 --> 00:00:58,099 with the tax department in the town of Sylva 24 00:00:58,099 --> 00:01:01,079 When her parents passed on, she moved to 25 00:01:01,079 --> 00:01:04,022 her own residence, cooks all her own meals 26 00:01:04,022 --> 00:01:05,090 and maintains the household. 27 00:01:05,090 --> 00:01:07,094 She credits the Partners program 28 00:01:07,094 --> 00:01:10,031 with helping her to interact in the community. 29 00:01:10,031 --> 00:01:16,057 It has changed my life completely. 30 00:01:16,057 --> 00:01:26,012 I have always wanted to be a public speaker. 31 00:01:26,012 --> 00:01:31,054 and that was a crazy idea, 32 00:01:31,054 --> 00:01:40,003 but Partners helped me realize that I could 33 00:01:40,003 --> 00:01:45,027 be a public speaker. 34 00:01:45,027 --> 00:01:53,081 That has always been a life dream of mine. 35 00:01:53,081 --> 00:02:01,002 From my perspective, it is to help 36 00:02:01,002 --> 00:02:09,026 parents of children with disabilities 37 00:02:09,026 --> 00:02:17,054 to not put their child in a box, 38 00:02:17,054 --> 00:02:23,071 but let them be all they can be, 39 00:02:23,071 --> 00:02:30,053 however little though that may be. 40 00:02:30,053 --> 00:02:33,085 That is so important. 41 00:02:33,085 --> 00:02:36,012 [male voice] Wanda is increasingly speaking out 42 00:02:36,012 --> 00:02:38,065 on issues of concern to people with disabilities 43 00:02:38,065 --> 00:02:40,076 addressing groups in a number of North Carolina 44 00:02:40,076 --> 00:02:44,016 communities. The Partners program director, 45 00:02:44,016 --> 00:02:46,058 Deborah Whitfield, an attorney who herself 46 00:02:46,058 --> 00:02:48,070 is a graduate of the program in Texas understands 47 00:02:48,070 --> 00:02:51,051 the growth process and now keeps the proceedings 48 00:02:51,051 --> 00:02:55,004 on track in North Carolina. 49 00:02:55,004 --> 00:02:58,023 There are some challenges, people who believe, that 50 00:02:58,023 --> 00:03:00,022 you know they can't do it because many of them 51 00:03:00,022 --> 00:03:02,043 haven't left their own communities. 52 00:03:02,043 --> 00:03:04,098 Many have never gotten on public transportation. 53 00:03:04,098 --> 00:03:08,022 Many have not even lived in a hotel room. 54 00:03:08,022 --> 00:03:11,081 So when you see those individuals 55 00:03:11,081 --> 00:03:13,032 who come to this training for the first time, 56 00:03:13,032 --> 00:03:15,075 get that experience and soar 57 00:03:15,075 --> 00:03:19,000 it is a delight to be a part of that process. 58 00:03:19,000 --> 00:03:21,025 [male voice] The creator of the Partners advocacy 59 00:03:21,025 --> 00:03:23,077 program, Dr. Colleen Wieck, of Minnesota, 60 00:03:23,077 --> 00:03:25,087 said it was prompted by a specific need 61 00:03:25,087 --> 00:03:27,087 and then grew from there. 62 00:03:28,083 --> 00:03:32,030 The last witness at the 3-hour hearing was 63 00:03:32,030 --> 00:03:34,020 a young parent from International Falls, 64 00:03:34,020 --> 00:03:37,012 Minnesota. And, everyone was giving her 65 00:03:37,012 --> 00:03:39,057 mixed messages about what to do to testify 66 00:03:39,057 --> 00:03:42,066 in front of U.S. Senator Dave Durenberger 67 00:03:42,066 --> 00:03:45,063 And, after that hearing, two of us got together 68 00:03:45,063 --> 00:03:48,043 and we realized, we could teach the skill 69 00:03:48,043 --> 00:03:51,033 that was missing. And, we could do this 70 00:03:51,033 --> 00:03:53,043 in a systematic way, as well as 71 00:03:53,043 --> 00:03:57,012 teach best practices about disability services. 72 00:03:57,012 --> 00:04:00,028 And, as a result, we created this 73 00:04:00,028 --> 00:04:03,005 eight weekend program that's designed to teach 74 00:04:03,005 --> 00:04:05,064 both- what is best practice 75 00:04:05,064 --> 00:04:08,030 in education, assistive technology, living 76 00:04:08,030 --> 00:04:11,015 and employment, as well as how to communicate 77 00:04:11,015 --> 00:04:14,013 with local, state and federal officials. 78 00:04:14,013 --> 00:04:16,037 [narrator voice] Because the need for people with 79 00:04:16,037 --> 00:04:17,086 intellectual and developmental disabilities 80 00:04:17,086 --> 00:04:19,057 to advocate for themselves 81 00:04:19,057 --> 00:04:21,077 is not limited by boundaries, Partners programs 82 00:04:21,077 --> 00:04:24,013 are being conducted in most states 83 00:04:24,013 --> 00:04:26,019 in the U.S., and a number of foreign countries. 84 00:04:26,019 --> 00:04:28,096 The individual needs vary, but there are 85 00:04:28,096 --> 00:04:30,037 some common themes. 86 00:04:30,037 --> 00:04:32,094 The desire for full inclusion often rises to the top. 87 00:04:34,009 --> 00:04:38,038 I think that the tips and the tools that you learn 88 00:04:38,038 --> 00:04:43,008 about advocating for yourself or for others 89 00:04:43,008 --> 00:04:49,045 are great. You can use them for any disability 90 00:04:49,045 --> 00:04:52,079 Being a blind person, I come against 91 00:04:52,079 --> 00:04:55,052 things all the time as far as 92 00:04:55,052 --> 00:05:02,018 what I can and can't do because 93 00:05:02,018 --> 00:05:05,066 I'm blind. They don't know what I can and can't do 94 00:05:05,066 --> 00:05:07,071 because they don't want to give you a chance. 95 00:05:07,071 --> 00:05:09,042 You have to speak up for yourself, 96 00:05:09,042 --> 00:05:11,029 so I learned to be more assertive. 97 00:05:11,029 --> 00:05:16,066 speak up for myself and sell myself. I have 98 00:05:16,066 --> 00:05:18,014 to do that. 99 00:05:18,014 --> 00:05:19,048 [narrator voice] While many graduates 100 00:05:19,048 --> 00:05:21,007 focus on issues of housing 101 00:05:21,007 --> 00:05:22,061 and employment, Doug Hedrick 102 00:05:22,061 --> 00:05:24,074 has zeroed in on respect, campaigning 103 00:05:24,074 --> 00:05:26,093 for the use of language that sees individuals 104 00:05:26,093 --> 00:05:30,021 with disabilities as people. The father of a son 105 00:05:30,021 --> 00:05:32,068 with autism, Hedrick went before the board of his 106 00:05:32,068 --> 00:05:35,042 local school district and got action. 107 00:05:35,042 --> 00:05:39,017 The eight month program gives you a lot of tools in 108 00:05:39,017 --> 00:05:42,087 your toolbelt, and I'm just starting to use 109 00:05:42,087 --> 00:05:44,059 a few of them. 110 00:05:44,059 --> 00:05:47,070 Some of the ones that I've used is being able to 111 00:05:47,070 --> 00:05:51,067 speak to school boards and facilitating 112 00:05:51,067 --> 00:05:54,069 a People First language policy. 113 00:05:54,069 --> 00:05:59,016 What Partners asked me to do, in the course, was 114 00:05:59,016 --> 00:06:02,094 to change or create policies, and I saw 115 00:06:02,094 --> 00:06:04,095 an opportunity with my school board in Burke 116 00:06:04,095 --> 00:06:08,033 County to say, let's use a People First 117 00:06:08,033 --> 00:06:11,013 language policy let's adopt that. 118 00:06:11,013 --> 00:06:13,092 And the interesting thing is ... 119 00:06:14,030 --> 00:06:16,031 and this is what I've learned in Partners. 120 00:06:16,031 --> 00:06:20,001 When you explain this to people. 121 00:06:20,001 --> 00:06:22,039 people generally do the right thing. 122 00:06:22,039 --> 00:06:26,022 People want to facilitate change 123 00:06:26,022 --> 00:06:29,046 if it's the right thing, and using a People First 124 00:06:29,046 --> 00:06:34,069 language policy is just a very good thing. 125 00:06:34,069 --> 00:06:38,061 And they adopted this policy last year, 126 00:06:38,061 --> 00:06:42,762 and they're using it today. 127 00:06:42,762 --> 00:06:44,811 [male narrator] Others have joined Hedrick 128 00:06:44,811 --> 00:06:47,127 as advocates of people first language 129 00:06:47,127 --> 00:06:49,273 a movement that has been supported 130 00:06:49,273 --> 00:06:50,481 and pressed by the North Carolina 131 00:06:50,481 --> 00:06:53,073 Council on Developmental Disabilities 132 00:06:53,073 --> 00:06:54,819 Together with other Partners graduates, Hedrick 133 00:06:54,819 --> 00:06:56,796 has helped push for People First language 134 00:06:56,796 --> 00:06:59,219 with webinars, telling supporters how they can 135 00:06:59,219 --> 00:07:00,951 carry the message to their own communities. 136 00:07:00,951 --> 00:07:04,881 They are demonstrating leadership in their 137 00:07:04,881 --> 00:07:06,718 communities, as many Partners graduates do. 138 00:07:06,718 --> 00:07:09,049 Debra Wilson completed the program 139 00:07:09,049 --> 00:07:11,287 and later was named a member of the 140 00:07:11,287 --> 00:07:12,926 North Carolina Council 141 00:07:12,926 --> 00:07:14,672 on Developmental Disabilities. She came to 142 00:07:14,672 --> 00:07:17,895 Partners when she was struggling to find ways 143 00:07:17,895 --> 00:07:19,841 of opening up workable education pathways 144 00:07:19,841 --> 00:07:21,993 for her daughter who has a visual impairment. 145 00:07:21,993 --> 00:07:25,662 We were having difficulties with our Onslow County 146 00:07:25,662 --> 00:07:28,362 school system where we live, and she was having 147 00:07:28,362 --> 00:07:33,788 to travel about two hours on a weekly basis 148 00:07:33,788 --> 00:07:37,611 just to be able to attend school and having 149 00:07:37,657 --> 00:07:40,034 to live somewhere besides her home environment. 150 00:07:40,049 --> 00:07:44,837 And, someone told me about Partners 151 00:07:44,837 --> 00:07:47,429 and asked if I thought I would be interested. And I 152 00:07:47,429 --> 00:07:49,960 didn't know anything about Partners at the time. 153 00:07:49,960 --> 00:07:53,956 And what happened was ultimately learning 154 00:07:53,956 --> 00:07:58,373 and being able to meet the people that Partners 155 00:07:58,373 --> 00:08:01,915 [laughs] It's almost like they pull them out of a hat but 156 00:08:01,915 --> 00:08:04,215 they're absolutely fantastic. 157 00:08:04,215 --> 00:08:07,098 And those people were able to show us 158 00:08:07,098 --> 00:08:09,693 not only knowledge but give us the power, 159 00:08:09,693 --> 00:08:12,687 show us power that we actually had, that we 160 00:08:12,687 --> 00:08:15,726 could change and make a difference to bring our 161 00:08:15,726 --> 00:08:18,322 children either home, in our case, 162 00:08:18,322 --> 00:08:20,280 or do what needed to be done so that 163 00:08:20,280 --> 00:08:23,243 they could get education. In every situation 164 00:08:23,243 --> 00:08:27,102 for us, and that's just being parents of our children 165 00:08:27,102 --> 00:08:28,688 with a disability. 166 00:08:28,688 --> 00:08:29,911 [male narrator] One young graduate 167 00:08:29,911 --> 00:08:33,011 of the program, self-advocate David Chatterton 168 00:08:33,011 --> 00:08:34,403 feels that the Partners program has been 169 00:08:34,403 --> 00:08:36,890 a great experience, and helped in preparing 170 00:08:36,890 --> 00:08:39,024 him for a career. 171 00:08:39,024 --> 00:08:43,447 I went into Partners because I wanted to meet 172 00:08:43,447 --> 00:08:46,416 new people, but also, I just kind of wanted to 173 00:08:46,416 --> 00:08:50,041 make a change in my life and to kind of get 174 00:08:50,044 --> 00:08:54,338 a strong sense of you know not letting people 175 00:08:54,338 --> 00:08:57,884 put you down, and what not. It was 176 00:08:57,884 --> 00:08:59,799 overwhelming, just because it goes deeper 177 00:08:59,799 --> 00:09:02,053 into the whole disability area. 178 00:09:02,053 --> 00:09:10,433 I love to educate myself. I love that others educate 179 00:09:10,433 --> 00:09:13,046 me as well. So, going into Partners, you meet a lot 180 00:09:13,046 --> 00:09:15,284 of people that share a lot of the same visions as you. 181 00:09:15,284 --> 00:09:18,896 [male narrator] David is now looking to the future 182 00:09:18,896 --> 00:09:21,165 to continue his education, pursue a career 183 00:09:21,165 --> 00:09:23,173 and use his advocacy skills. 184 00:09:23,173 --> 00:09:25,628 Nurturing leadership and advocacy, and providing 185 00:09:25,628 --> 00:09:27,866 the voices of the future for people with 186 00:09:27,866 --> 00:09:30,289 intellectual and developmental disabilities 187 00:09:30,289 --> 00:09:34,724 is a primary purpose of Partners in Policymaking 188 00:09:34,724 --> 00:09:37,132 Holly Riddle, the executive director of the 189 00:09:37,132 --> 00:09:40,124 North Carolina Council, says it is a strong 190 00:09:40,124 --> 00:09:42,424 supporter and funder of the program. 191 00:09:42,424 --> 00:09:46,001 Many boards, commissions, committees, offices 192 00:09:46,001 --> 00:09:50,220 are staffed or are joined by Partners in Policymaking 193 00:09:50,220 --> 00:09:52,851 graduates. When people come to Partners, they 194 00:09:52,851 --> 00:09:57,705 are the finest leaders that we get application from 195 00:09:57,705 --> 00:10:00,354 and when they come out, they can't be beat. 196 00:10:00,354 --> 00:10:05,739 It has always been the case that it is from individuals 197 00:10:05,739 --> 00:10:09,815 with disabilities and families that innovations come. 198 00:10:09,815 --> 00:10:12,467 When you're that close to the life of someone 199 00:10:12,467 --> 00:10:17,775 or when it is your own life, you think on your feet 200 00:10:17,775 --> 00:10:22,646 so many of the ideas that inform the field today 201 00:10:22,646 --> 00:10:25,524 at a systems level began in someone's living room 202 00:10:25,524 --> 00:10:30,249 in a classroom with an individual, or with a family 203 00:10:30,249 --> 00:10:34,876 many of them Partners in Policymaking graduates. 204 00:10:34,876 --> 00:10:36,699 [male narrator] There remains a challenging road 205 00:10:36,699 --> 00:10:39,629 ahead for people with intellectual and developmental 206 00:10:39,629 --> 00:10:42,663 disabilities, and the hope for change lies in improving 207 00:10:42,663 --> 00:10:45,194 the policies and systems designed to support 208 00:10:45,194 --> 00:10:48,381 and encourage these individuals and their families. 209 00:10:48,381 --> 00:10:50,192 It is people, such as the graduates of the 210 00:10:50,192 --> 00:10:54,076 Partners in Policymaking program who 211 00:10:54,076 --> 00:10:55,730 will bring about that system change. 212 00:10:55,730 --> 00:10:59,282 And after Partners, became empowered, 213 00:10:59,282 --> 00:11:02,074 and knowledge is power. 214 00:11:02,074 --> 00:11:07,130 And once that happened, the bitterness, 215 00:11:07,130 --> 00:11:14,378 the anger- it left. And now you learn, you know 216 00:11:14,378 --> 00:11:17,437 that people are people, and you learn how to deal 217 00:11:17,437 --> 00:11:20,484 with every different person there is in every 218 00:11:20,484 --> 00:11:30,747 situation. And those situations, they need to be 219 00:11:30,747 --> 00:11:33,953 used to help benefit, not only my child 220 00:11:33,953 --> 00:11:36,684 and my daughter, but they need to be used 221 00:11:36,684 --> 00:11:40,234 to benefit all disabilities, all disabilities. 222 00:11:40,234 --> 00:11:44,292 And everything that I can do and everything 223 00:11:44,292 --> 00:11:48,357 I've learned is important so that I keep my anger 224 00:11:48,357 --> 00:11:51,474 out of it, that it's not about the people 225 00:11:51,474 --> 00:11:55,236 it's about situations that we need to resolve 226 00:11:55,236 --> 00:11:58,136 and how we can go about doing those things, 227 00:11:58,136 --> 00:12:01,240 and, there again, the more knowledge you have 228 00:12:01,240 --> 00:12:04,110 the more power you have, which ultimately 229 00:12:04,110 --> 00:12:07,039 can make a change, and that's what it's about. 230 00:12:07,048 --> 00:12:10,588 [male narrator] Partners in Policymaking, a program 231 00:12:10,588 --> 00:12:14,001 to educate and to motivate, a program of action 232 00:12:14,001 --> 00:12:17,041 a program for the future. 233 00:12:17,041 --> 00:12:28,706 [music]